A Free Peripheral Neuropathy Support Site
We don't accept advertising and we're not selling anything!
(Scroll Down to the four "Important Topics")
About Us: We hold monthly Zoom meetings! These 90-minute "Open Mic" discussions are held at 4 PM ET on the second Monday of each month
Our Next Group Zoom Meeting Is Monday, June 13, 2022
We Are The Original Zoom P-N Online Support Group!
We're all about coping with P-N and have the largest collection of free coping tips anywhere! Do you have any tips to add? Send them to: contactingcj@gmail.com
WE HAVE A PODCAST! Find us on Spotify or go here: https://anchor.fm/deanna-munzert
Also, Visit Us On Facebook:
Important Topics
OUR PERIPHERAL NEUROPATHY RESOURCES PODCASTS Are Available on Breaker, Google Podcasts, Pocket Casts, Radio Public, Spotify AND ALL EPISODES ARE LISTED HERE...
https://anchor.fm/deanna-munzert
Episode 0001: Coping Tips
Episode 0002: More Coping Tips
Episode 0003: Coping Tips / Life Hacks
Episode 0004: RN Pamelia joins us for a conversation on "How to interact with your doctor"
Episode 0005: Hand Controls for Cars
Episode 0006: Bathroom safety
Episode 0007: Traveling with PN
Episode 0008: PN Prescription Meds
Episode 0009: De's visit to a marijuana store:
Episode 0010: Foot horror stories!:
Episode 0011: Conditions that mimic PN! (could you have one of these?):
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Episode 0012: "Pain Acceptance," is this a good idea? https://anchor.fm/deanna-munzert/episodes/Pain-acceptance---What-does-that-mean-e17c3ab
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LISTED HERE ARE MORE PERIPHERAL NEUROPATHY ZOOM SUPPORT GROUPS:
-MICHAEL WRIGHT’S Peripheral Neuropathy Success Stories https://www.facebook.com/groups/2332384087048967 now has Zoom meetings on Thursdays. Contact Michael at: michaeljordanw@me.com
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-DC METRO PERIPHERAL NEUROPATHY: Saturday meetings. Visit their website at: https://dcpnsupport.org/. Contact Pat Gualtieri at
pkgualtieri7@gmail.com for more information.
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-Monterey, CA Neuropathy Support Group: Wednesdays. email Bill Donovan MD at wbdpad@cal.berkeley.edu - give name, address, telephone number and email address. Do this even if you have done it before this. He may have a new link to give you.
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-Houston, TX Neuropathy Support Group: Saturdays. For Zoom link, email Katherine Stenzel at klstenzel@hotmail.com - provide name, address, telephone number and email address.
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-Host – Glenn Ribotsky glenntaj@yahoo.com : Wednesday's on Zoom Meeting ID: 863 2548 2422 Passcode: 609857
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-Host – John Phillips john.phillips1976@icloud.com: Saturday Zoom Meetings - ID: 818 9099 1051 Passcode: 227946
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-Would you prefer just using a telephone (and not Zoom)?
Bev Anderson, Western Neuropathy Association (WNA) President, invites you to find call in dates here:
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-Suburban Hospital (Washingon DC area) is now sponsoring a support group for those with peripheral neuropathy (PN).
For more information contact Steve Klitzman steve.klitzman@gmail.com
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And the Foundation for Peripheral Neuropathy (FPN) has Webinars: Go here...
https://www.foundationforpn.org/
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WHAT'S NEW IN FEATURED WRITERS (above)...
Marcia Plevin, who now lives in Italy, tells her fascinating story about dealing with peripheral neuropathy as a dancer!
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USING A SMART PHONE? SEE MORE LINKS WHEN YOU CLICK ON THE THREE DASHES AT THE TOP OF THE HOME PAGE.
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HOW TO USE ZOOM
For detailed Zoom instructions, go to the top of the home page and click on "Connecting To Meetings" (if using a smart phone, click on the three dashes at the top of the page)
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Would you like to correspond with someone about your peripheral neuropathy? v v v
THESE ADVISORS TO OUR GROUP WOULD WELCOME CORRESPONDING WITH YOU:
(Atlanta: Auto hand controls)
Paul paul6ta@yahoo.com
(Missouri: Marijuana / CBD as therapy)
(Charlotte, NC area: Idiopathic Neuropathy)
Joe K. fooetoou2@gmail.com
(Dubuque, IA: Scrambler Therapy, Saving Money on Drugs)
Phil: pclutts@carolina.rr.com
(Charlotte, NC: Car hand controls)
Barlow: contactingcj@gmail.com
(NY: Tai Chi, Essential Tremors)
Cj Holliday: contactingcj@gmail.com
(Greensboro, NC: Group Host / Connecting to meetings)
Diane: dk.mo@hotmail.com
(Asheville, NC; Diane's a great contact for anyone diagnosed with Erythromelalgia (EM) !)
Barbara C.: bcbookpolisher@gmail.com
(From near Philadelphia. Barbara is great for discussing myofascial release massage, Gigong classes and how to get the most out of your classes)
Note: Correspondents will not recommend actions for you to take, but will describe what has or hasn't worked for them and can pass along any additional information they have that may help)
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Peripheral Neuropathy Resources
Site Updated: May 10, 2022 - Site creator & Moderator is Cj Holliday. Special thanks to editors Phil Clutts & Deanna Munzert and site IT Manager Judy Holliday
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