September 14 2020 Meeting Follow Up Notes:
MY HEARTFELT THANKS TO DE MUNZERT WHO EXPERTLY RAN THESE MEETINGS & CREATED THESE WONDERFUL NOTES - Cj
4 p.m. Meeting
Approximately 27 PNR group members joined the 4 p.m. call. De Munzert hosted with Michael Wright as co-host.
7 p.m. Meeting
Approximately 24 PNR group members joined the 7 p.m. call. De Munzert moderated.
Please forward any questions to De Munzert at firstname.lastname@example.org.
AUGUST 10 2020 FOLLOW UP NOTES:
4 PM ET “OPEN MIC” NOTES:
-We discussed technical difficulties in sending out invitations to some 300 names on our group email list. Going forward, one group email reminder will go out early on the meeting day (second Monday of each month) with an invitation link good for both the 4 PM ET and 7 PM ET meetings. Participants can save this link for all future meetings in case a reminder email fails to reach you.
-We welcomed 6 new attendees! Karleen, Connie, Kathleen, Rebecca, Barbara & Lisa
-Cj encouraged anyone who would like write a few paragraphs about some aspect of P-N to send it in for possible inclusion in the “Featured Writers” section of the PNR website: https://peripheralneuropathyresources.com/
-Bill recommended chair water aerobics
-Kathleen spoke of DMG: https://www.naturalmedicinejournal.com/blog/surprising-benefits-dmg-supplements
-Lots of good discussions including the effectiveness of melatonin as a sleep aid, black box warnings on drugs and more. Join us again Sept. 14 to be part of these interesting and informative discussions about peripheral neuropathy.
7 PM ET “SPEAKER” NOTES:
-Lucy Dunning and Jeanevieve Wardell from Blue sky counselling gave us an excellent overview of cognitive behavioral therapy: https://blueskyfamilycounseling.com/
-A video exists and may be viewed here… https://us02web.zoom.us/rec/share/7JZxaJ7Q7EhITYnr4WODe5I6DofeX6a8hnNK8qYJyxnGjG0ZTmxEpEAuisByU9sX(Password: aX%pT7NQ)
-And along the same lines is this link: https://blogs.psychcentral.com/weightless/2020/08/10-ways-to-deal-with-distressing-thoughts/
SEE YOU AGAIN SEPTEMBER 14 AT 4 PM ET AND 7 PM ET! CJ
JULY 2020 FOLLOW UP NOTES...
LINKS THAT WERE DISCUSSED:
-Cj said spray Aspercreme with Lidocaine did not work for his stabbing pains: https://aspercreme.com/products/lidocaine-dry-spray/
-The Pain Science website was mentioned: https://www.painscience.com/
-Sheep Roving stuffed in shoes came up: https://www.etsy.com/listing/658139599/1-lb-white-wool-rovingwool-fiber-wool?ga_order=most_relevant&ga_search_type=all&ga_view_type=gallery&ga_search_query=sheep+wool+roving&ref=sc_gallery-1-1&plkey=09a2b9290fce48c00bcd2067a7eaa93a391dc37f%3A658139599&frs=1
-Burning Mouth Syndrome came up: https://www.nidcr.nih.gov/health-info/burning-mouth
-Gralise as a form of Gabapentin was brought up: https://www.rxlist.com/gralise-drug.htm
-Neuromuscular Neurologists may be the best Neurologists to see: https://doctor.webmd.com/find-a-doctor/specialty/neuromuscular-medicine
(my apologies for not linking these topics to the attendees that brought them up. Sloppy notes. I’ll correct that next month!)
PERIPHERAL NEUROPATHY ZOOM MEETINGS ARE INCREASINGLY AVAILABLE. HERE ARE THREE:
-MICHAEL WRIGHT’S Peripheral Neuropathy Success Stories (https://www.facebook.com/groups/2332384087048967) now has Zoom meetings every other Thursday. You can contact Michael at: email@example.com
-DC METRO PERIPHERAL NEUROPATHY: Visit our website at https://dcpnsupport.org/ and send in the contact form and we will send you an invitation. DC Metro next meeting will be on July 18, from 2:00-4:00 .
-DR DONOVAN’S WEST COAST MEETINGS will meet monthly on the third Wednesday of each month from 10:30-11:30. You can write Dr. Donovan for details on getting invitations: firstname.lastname@example.org
7 PM SPEAKER MEETING WAS SHOSHANA LEOPOLD ON REFLEXOLOGY: https://reflexology-usa.org/
(Shoshana’s notes are attached)
NEXT MEETINGS ARE MONDAY, AUGUST 10, 2020