A Free Peripheral Neuropathy Support Site
We don't accept advertising and we're not selling anything!
Our Next Group Zoom Meeting Is Monday, April 8, 2024
Meetings are the Second Monday of each Month
These 90-minute "Open Mic" discussions are at 3:30 PM ET
(Scroll Down to the four "Important Topics")
We Are The Original Zoom P-N Online Support Group!
We are about coping with P-N and have the largest collection of free coping tips anywhere! Do you have any tips? Join our meetings and share them!
WE HAVE A PODCAST! Find us on Spotify or copy and paste this link: https://anchor.fm/peripheralneuropathyresources
Also, Visit Us On Facebook:
Important Topics
OUR PERIPHERAL NEUROPATHY RESOURCES PODCASTS Are Available on Breaker, Google Podcasts, Pocket Casts, Radio Public, Spotify AND ALL EPISODES ARE LISTED HERE (copy & paste into your browser...)
https://anchor.fm/peripheralneuropathyresources
Episode 0001: Coping Tips
Episode 0002: More Coping Tips
Episode 0003: Coping Tips / Life Hacks
Episode 0004: RN Pamelia joins us for a conversation on "How to interact with your doctor"
Episode 0005: Hand Controls for Cars
Episode 0006: Bathroom safety
Episode 0007: Traveling with PN
Episode 0008: PN Prescription Meds
Episode 0009: De's visit to a marijuana store:
Episode 0010: Foot horror stories!:
Episode 0011: Conditions that mimic PN! (could you have one of these?):
Episode 0012: "Pain Acceptance," is this a good idea?
Episode13: Handicap Placards
Episode 14: Famous people with PN
(Find us on Spotify or copy and paste this link: https://anchor.fm/peripheralneuropathyresources)
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LISTED HERE ARE MORE PERIPHERAL NEUROPATHY ZOOM SUPPORT GROUPS:
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-MICHAEL WRIGHT’S Peripheral Neuropathy Success Stories https://www.facebook.com/groups/2332384087048967 now has Zoom meetings on Thursdays. Contact Michael at: mwrightketron@gmail.com
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-PERIPHERAL NEUROPATHY SUPPORT NETWORK: Saturday meetings. Visit their website at: pnsnetwork.org Contact Pat Gualtieri at
pkgualtieri7@gmail.com for more information.
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Here's a Canadian PN Support Group!:
Linda Petiot BSC
CNA President
Calgary Neuropathy Association
PO Box 72068
RPO Glenmore Landing
Calgary, AB T2V 5H9
CNA Info line: 403 668-9777
e-mail: info@calgaryneuropathy.com
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Are you in Colorado? Contact Jenny Fraser to join her Colorado residents-only Zoom PN group:
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Western Neuropathy PN Support Group: Saturdays, plus two other PN meetings! For Zoom link, email Katherine Stenzel at klstenzel@hotmail.com - provide name, address, telephone number and email address.
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Host – Glenn Ribotsky glenntaj@yahoo.com : Wednesday's on Zoom Meeting ID: 863 2548 2422 Passcode: 609857
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Host – John Phillips john.phillips1976@icloud.com: Saturday Zoom Meetings - ID: 818 9099 1051 Passcode: 227946
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Host – John Phillips john.phillips1976@icloud.com:
Contact John if you are interested in IVIG treatments - he has a group for that, too!
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Suburban Hospital (Washingon DC area) is now sponsoring a support group for those with peripheral neuropathy (PN).
For more information contact Steve Klitzman steve.klitzman@gmail.com
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Metrowest Boston Neuropathy Support Group is open to anyone in New England. Meet by Zoom on the third Thursday of each month September through June. All interested should contact Leslie at: lcmacgr@gmail.com
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NYU Langone Neuropathy Group
Monthly meetings (Wednesdays), open to all, For information email
https://nyulangone.zoom.us/j/97462269623?pwd=N0NNM0RFUG1HaHhBcG5kNEFuQ3FBdz09
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And the Foundation for Peripheral Neuropathy (FPN) has Webinars: Go here...
https://www.foundationforpn.org/
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WHAT'S NEW IN "MEETING NOTES":
We post the "chat notes" from our monthly Zoom meetings!
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USING A SMART PHONE? SEE MORE LINKS WHEN YOU CLICK ON THE THREE DASHES AT THE TOP OF THE HOME PAGE.
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OFFBEAT INFORMATION:
"Addiction" Is when chemical changes in the brain make something extremely difficult to resist.
"Dependence" is a physical need that can be resisted with with determination and effort.
Dependence can lead to addiction.
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Would you like to correspond with someone about your peripheral neuropathy? (see below):
OUR GROUP DIRECTORS WOULD WELCOME CORRESPONDING WITH YOU ON ANY P-N RELATED TOPIC (NOT JUST THOSE LISTED UNDER EACH NAME. To contact a director, contact me at: contactingcj@gmail.com
De Munzert:
(Atlanta: Auto hand controls, severe foot issues including surgery)
Paul Sixta:
(Missouri: Marijuana / THC as therapy, Charcot Foot)
Jay Selman:
(Charlotte, NC area: Idiopathic Neuropathy, toe amputations)
Joe Korzelik:
(Dubuque, IA: Scrambler Therapy, Saving Money on Drugs)
Phil Clutts:
(Charlotte, NC: Car hand controls)
Barlow Humphries:
(NY: Tai Chi, Essential Tremors)
Cj Holliday:
(Greensboro, NC: Group Host / Connecting to meetings)
Diane Mowitz:
(Asheville, NC; Diane's a great contact for anyone diagnosed with Erythromelalgia (EM) !)
Barbara Crawford:
(From near Philadelphia. Barbara is great for discussing myofascial release massage, Gigong classes and how to get the most out of your classes)
Note: Correspondents will not recommend actions for you to take, but will describe what has or hasn't worked for them and can pass along any additional information they have that may help)
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Peripheral Neuropathy Resources
Site Updated: March 22, 2024 - Site creator & Moderator is Cj Holliday. Special thanks to editors Phil Clutts & Deanna Munzert and site IT Manager Judy Holliday
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