A Free Peripheral Neuropathy Support Site
We don't accept advertising and we're not selling anything!
After 14 years of monthly support group leadership, I have made the difficult decision to discontinue monthly meetings for 2025. I enjoyed the meetings, but being properly prepared for meetings was getting more difficult.
After consulting with our group Directors and with their support and advice, I'm considering a Zoom alternative for 2025. Let me or any of the Directors know if you are interested in keeping in touch. Note that this website and our Facebook page will be continued.
>Other Excellent Support Group Meetings Are Listed Below<
Be Sure To Scroll Down to the four Important Topics
We are about coping with P-N and have the largest collection of free coping tips anywhere (see below)
Important Topics
OUR PERIPHERAL NEUROPATHY RESOURCES PODCASTS Are Available on Breaker, Google Podcasts, Pocket Casts, Radio Public, Spotify AND ALL EPISODES ARE LISTED HERE (copy & paste into your browser...)
https://anchor.fm/peripheralneuropathyresources
Episode 0001: Coping Tips
Episode 0002: More Coping Tips
Episode 0003: Coping Tips / Life Hacks
Episode 0004: RN Pamelia joins us for a conversation on "How to interact with your doctor"
Episode 0005: Hand Controls for Cars
Episode 0006: Bathroom safety
Episode 0007: Traveling with PN
Episode 0008: PN Prescription Meds
Episode 0009: De's visit to a marijuana store:
Episode 0010: Foot horror stories!:
Episode 0011: Conditions that mimic PN! (could you have one of these?):
Episode 0012: "Pain Acceptance," is this a good idea?
Episode13: Handicap Placards
Episode 14: Famous people with PN
(Find us on Spotify or copy and paste this link: https://anchor.fm/peripheralneuropathyresources)
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LISTED HERE ARE A SELECTION OF PERIPHERAL NEUROPATHY ZOOM SUPPORT GROUPS & MEETINGS:
WESTERN NEUROPATHY ASSOCIATION (WNA) SUPPORT GROUPS:
Saturdays, plus other Zoom PN meetings.
For Zoom links, email Katherine Stenzel at klstenzel@hotmail.com
Some other WNA Meeings -
Glenn Ribotsky:
glenntaj@yahoo.com : Wednesday's on Zoom Meeting ID: 863 2548 2422 Passcode: 609857
John Phillips john.phillips1976@icloud.com: Saturday Zoom Meetings - ID: 818 9099 1051 Passcode: 227946-Contact John if you are interested in IVIG treatments - he has a group for that,too!
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-PERIPHERAL NEUROPATHY SUPPORT NETWORK:
Saturday meetings.Visit their website at: pnsnetwork.orgContact Pat Gualtieri at pkgualtieri7@gmail.com for more information.
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Here's a Canadian PN Support Group!:
Linda Petiot BSCCNA President Calgary Neuropathy Association
PO Box 72068 RPO Glenmore Landing Calgary, AB T2V 5H9 CNA Info line: 403 668-9777 e-mail: info@calgaryneuropathy.com
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Are you in Colorado? Contact Jenny Fraser to join her Colorado residents-only Zoom PN group:
fraser.jeanette@gmail.com
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Metrowest Boston Neuropathy Support Group
Open to anyone in New England.Meet by Zoom on the third Thursday of each month September through June.All interested should contact Leslie at:
lcmacgr@gmail.com
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Are you in the greater Hartford, Connecticut area?
Cynthia Colton-Reichler holds live in-person meetings! Contact her here...ccreichler@gmail.com
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NYU Langone Neuropathy Group
Monthly meetings (Wednesdays), open to all, For information email Angela.Pokorny@nyulangone.org
https://nyulangone.zoom.us/j/97462269623pwd=N0NNM0RFUG1HaHhBcG5kNEFuQ3FBdz09
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FOUNDATION FOR PERIPHERAL NEUROPATHY
FPN has Webinars: Go here...
https://www.foundationforpn.org/
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Pittsburgh Area PN Support Group:
Third Wednesday at 6:30 pm (ET) (In-person and via Zoom).Contact Bill Wilshire at: wilshireb@comcast.net_
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Bethesda/Chevy Chase Md. Support Group:
Third Thursday at 7:00 pm (ET) Contact:
https://peripheral-neuropathy.events.suburbanhospital.org/ or steve.klitzman@gmail.com
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Northern and West Essex, NJ Support Group:
Third Thursday at 7:00pm (ET).Contact Mary Robertson at
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RECOMMENDED FACEBOOK GROUPS:
-Peripheral Neuropathy Success Stories - A Positive Support Group
-Neuropathy Care Support Group
-Our Neuropathy Friends
-Peripheral Neuropathy Resources
-The Foundation for Peripheral Neuropathy
-Neuropathy Support Network
WHAT'S NEW IN "MEETING NOTES":
We post the "chat notes" from our monthly Zoom meetings!
AND NOW, the videos we watched are also listed with the chat notes!
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USING A SMART PHONE? SEE MORE LINKS WHEN YOU CLICK ON THE THREE DASHES AT THE TOP OF THE HOME PAGE.
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OFFBEAT INFORMATION:
"Habit Forming" Is when a medication or action is done by rote creating an unexamined belief that it is necessary.
"Addiction" Is when chemical changes in the brain make something extremely difficult to resist.
"Dependence" is a physical need that can be resisted only with determination and great effort.
Dependence can lead to addiction.
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Would you like to correspond with someone about your peripheral neuropathy? (see below):
OUR GROUP DIRECTORS & CONSULTANTS WOULD WELCOME CORRESPONDING WITH YOU ON ANY P-N RELATED TOPIC (NOT JUST THOSE LISTED UNDER EACH NAME. To contact anyone listed here, contact me at: contactingcj@gmail.com
De Munzert, Meeting & Podcast Co-host:
(Atlanta: Auto hand controls, severe foot issues including surgery)
Paul Sixta, Consultant:
(Missouri: Marijuana / THC as therapy, Charcot Foot)
Jay Selman, Consultant:
(Charlotte, NC area: Idiopathic Neuropathy, toe amputations)
Joe Korzelik, Director & Past Group Leader:
(Dubuque, IA: Scrambler Therapy, Saving Money on Drugs)
Phil Clutts, Director & Website Advisor:
(Charlotte, NC: Car hand controls)
Barlow Humphries, Director & PN Group Leader:
(NY: Tai Chi, Essential Tremors)
Cj Holliday, Support Group Leader:
(Greensboro, NC: Group Host / Connecting to meetings)
Diane Mowitz, Director & Actively Involved with National EM* Support :
(Asheville, NC; Diane's a great contact for anyone diagnosed with *Erythromelalgia (EM) !)
Barbara Crawford, Director and Second Group Co-Host:
(From Philadelphia. Barbara is great for discussing myofascial release massage, Gigong classes and how to get the most out of your classes)
Note: Correspondents will not recommend actions for you to take, but will describe what has or hasn't worked for them and can pass along any additional information they have that may help)
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QUESTIONS? CONCERNS? WHAT MORE WOULD YOU LIKE TO SEE FROM THIS WEBSITE? CONTACT ME AT:
Peripheral Neuropathy Resources
Site Updated: January 14, 2025 - Site creator & Moderator is Cj Holliday. Special thanks to editors Phil Clutts & Deanna Munzert and site IT Manager Judy Holliday
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